Dignity over pity
We represent people as full human beings with agency — not as victims. A story at one moment in time does not define anyone.
Lived Experience
The voices of the SFT community.
Solitary Fibrous Tumor is rare enough that most newly diagnosed patients feel profoundly alone. Your story — told in your own words, on your terms — is the fastest way to change that.
Featured stories
As our Lived Experience Program launches, published patient and caregiver stories will appear here. Each will be shared only with the storyteller's written consent and reviewed by them before going public.
Be one of the first to share
Whether you're newly diagnosed, in remission, or caring for someone with SFT, your experience matters.
Share your storyWays to contribute
Choose what feels right for you.
Written stories
Share your story in your own words through our website form — the easiest way to contribute.
Recorded interviews
A guided conversation with a trained interviewer, edited with your approval into a shareable piece.
Community survey
A short, mostly multiple-choice survey open to anyone in the community — under ten minutes.
Our commitment to you
The storyteller comes before the story.
We follow established ethical-storytelling practices for nonprofits and health organizations. Every story is guided by four commitments.
You control your story
You choose how you are identified, review your story before it is public, and can update or withdraw it at any time.
Privacy by default
We collect only what is needed, offer anonymity freely, and never share another person's private health information without their consent.
Care for the storyteller
You can skip any question, take breaks, or stop at any time. No one should feel worse for having shared.
Ready when you are
Share your SFT story.
Every story helps another patient feel less alone and moves the mission forward.