Events
Come together as a community.
Support group meetings, patient and caregiver webinars, awareness days, and fundraising gatherings. Check back regularly — new events are added as they are scheduled.
Upcoming
What's next
New events coming soon
We are planning our first community meetings and webinars. Sign up as a volunteer to be notified when the calendar opens.
Get notifiedEvent types
Ways to connect
Support group meetings
Peer-led virtual gatherings for patients and caregivers to share experiences and support one another.
Educational webinars
Conversations with clinicians and researchers on diagnosis, treatment, and living well with SFT.
Community & fundraising
Awareness days, meetups, and events that help fund research and grow the SFTF community.