Help Build the Future of SFTF
Solitary Fibrous Tumor is rare. The people affected by it should not have to face it alone.
The Solitary Fibrous Tumor Foundation was created by patients and advocates to connect the SFT community, improve access to reliable information, strengthen the patient voice, and help accelerate research.
We are still early in this work. That makes every donor especially important.
Your support helps us build the foundation SFT patients and families have needed for years.
What Your Support Makes Possible
SFT is an ultra-rare tumor. That rarity creates challenges throughout the patient journey.
Many people struggle to find experienced physicians, reliable information, other SFT patients, appropriate research opportunities, and answers to basic questions about their disease. SFTF is working to change that.
Develop practical education and resources for patients and caregivers
Connect and strengthen the global SFT community
Identify and communicate patient priorities
Build relationships with leading SFT clinicians and researchers
Encourage collaboration across institutions
Support initiatives that expand knowledge of SFT
Increase awareness of this rare disease
Develop the organizational infrastructure required to sustain this work
Why Give Now?
This is an unusually important time to participate.
SFTF is a new organization. Early donors help determine how quickly we can move from ideas to programs, from conversations to collaborations, and from an informal patient community to a durable organization capable of advancing SFT research and patient support.
Someday, we hope SFTF will be an established institution with years of programs, research partnerships, and accomplishments behind it. Right now, you have the opportunity to help build it.
Give Monthly
Research, education, advocacy, and patient support require consistent resources. A recurring gift keeps SFT moving forward.
Give in Honor of Someone
Recognize a patient, survivor, caregiver, physician, researcher, or loved one. Mark a birthday, anniversary, treatment milestone, or other meaningful occasion.
Help Beyond Your Gift
Introduce SFTF to friends, family, coworkers, and others who care about rare disease or patient advocacy. A personal introduction can be as valuable as a donation.
Stay Connected
Sign up for the SFTF newsletter.
Get occasional updates on SFTF programs, patient resources, research, and ways to get involved.
We Are Building This Together
Become a Founding Friend of SFTF.
Patients. Caregivers. Families. Researchers. Clinicians. Friends. Volunteers. Donors. Each person can help move the work forward.
The Solitary Fibrous Tumor Foundation is a 501(c)(3) nonprofit organization. Donations are tax-deductible to the extent permitted by law.