About the Foundation
SFTF is being built by a growing group of patients, caregivers, clinicians, researchers, and advocates who share one goal: improving life for everyone affected by Solitary Fibrous Tumor.
Board of Directors
Our Board oversees SFTF's mission, strategy, and long-term sustainability.
Co-founder & Board Member
Steve McBee is a co-founder and board member of the Solitary Fibrous Tumor Foundation. A long-term SFT patient and advocate, Steve brings more than 20 years of experience in the SFT community, along with a background in entrepreneurship, brand strategy, communications, and community-building. He is the founder and CEO of Superdeluxe, a branded merchandise agency.
LinkedInCo-founder & Board Member
Dina Rollman is a co-founder and board member of the Solitary Fibrous Tumor Foundation. She brings legal, business, governance, and nonprofit leadership experience to the foundation’s early development. Dina is helping guide SFTF’s legal formation, governance structure, and organizational foundation.
LinkedInBoard Member
Steve Ducòs is a board member of the Solitary Fibrous Tumor Foundation. As an SFT patient, he brings lived experience along with a professional background in healthcare communications, multicultural marketing, partnerships, equity, and patient-centered outreach.
LinkedInBoard Member
Sydney Zacher is a board member of the Solitary Fibrous Tumor Foundation. She brings a clinical research background and a personal connection to the SFT community through her family’s experience with the disease. Her perspective helps connect patient and caregiver priorities with research participation and patient engagement.
LinkedInBoard Member
Marvin Schuldiner is a board member of the Solitary Fibrous Tumor Foundation. He brings experience in mediation, arbitration, business problem-solving, and organizational process. His background supports SFTF’s early work in governance, board operations, and practical decision-making.
LinkedInBoard Member
Bethany Lucas is a board member of the Solitary Fibrous Tumor Foundation. She is an associate professor at Regis University, where she teaches in biology, biomedical sciences, genetics, and genomics. As both a scientist and SFT patient, Bethany brings scientific training and lived experience to the foundation.
LinkedInScientific & Medical Advisory Board
Our Advisory Board brings together clinicians and researchers with deep expertise in Solitary Fibrous Tumor and rare sarcomas. Members will be announced here as invitations are accepted.
Names and biographies will appear here as we finalize our leadership.
Names and biographies will appear here as we finalize our leadership.
Names and biographies will appear here as we finalize our leadership.
Names and biographies will appear here as we finalize our leadership.
Join us
We're actively identifying founding board and advisory board members. If you'd like to be considered, we'd love to hear from you.
